{"id":{"repo_id":"vt","oai_identifier":"oai:vtechworks.lib.vt.edu:10919/78012"},"canonical_url":"https://search.dev.ndltd.org/etd/vt/oai:vtechworks.lib.vt.edu:10919/78012","repository":{"repo_id":"vt","name":"Virginia Tech","base_url":"https://vtechworks.lib.vt.edu/oai/request"},"display":{"title":"Agency in the Midst of Illness Uncertainty: How Women and Families Live without a Diagnosis","abstract":"Those living without a diagnosis reside in an invisible margin of health and family research. The purpose of this study was to explore illness uncertainty as experienced by women and their families in the United States. I examined illness uncertainty through a feminist ecological interactionist (FEI) approach with three core constructs: interaction, agency, and context. I conducted narrative-focused, semi-structured interviews with 15 women (aged 25-46) and 11 family members (aged 22 to 62) identified by each woman and completed a constant comparative grounded theory analysis. The findings revealed women's lived experiences with symptoms and social support, interactions with the medical system, and agency in the context of such uncertainty. Findings also model a System of Illness Uncertainty that contends that women's experiences with illness uncertainty is an endless process that changes over time. In the System of Illness Uncertainty, women were Doubters, Resisters, Persisters, or Burnouts; all women experienced a paradigm shift regarding the Western health system as a result of their experiences. This research adds to the knowledge base on individuals who occupy spaces between the legitimized, diagnosable ill and the symptom-free healthy. Implications affect not only individuals and their families, but the politics of Western medical establishments.","abstract_html":"Those living without a diagnosis reside in an invisible margin of health and family research. The purpose of this study was to explore illness uncertainty as experienced by women and their families in the United States. I examined illness uncertainty through a feminist ecological interactionist (FEI) approach with three core constructs: interaction, agency, and context. I conducted narrative-focused, semi-structured interviews with 15 women (aged 25-46) and 11 family members (aged 22 to 62) identified by each woman and completed a constant comparative grounded theory analysis. The findings revealed women's lived experiences with symptoms and social support, interactions with the medical system, and agency in the context of such uncertainty. Findings also model a System of Illness Uncertainty that contends that women's experiences with illness uncertainty is an endless process that changes over time. In the System of Illness Uncertainty, women were Doubters, Resisters, Persisters, or Burnouts; all women experienced a paradigm shift regarding the Western health system as a result of their experiences. This research adds to the knowledge base on individuals who occupy spaces between the legitimized, diagnosable ill and the symptom-free healthy. Implications affect not only individuals and their families, but the politics of Western medical establishments.","abstract_has_math":false,"creators":["Potter, Emma C."],"institution":"Virginia Tech","degree_name":"Ph. D.","degree_level":"doctoral","degree_discipline":"Human Development","degree_department":"Human Development","school":null,"contributors":[],"advisors":[],"committee_chairs":["Allen, Katherine R."],"committee_members":["Kaestle, Christine E.","Roberto, Karen A.","Few-Demo, April L."],"year":2017,"date_issued":"2017-06-09","date_published":"2017-06-09","updated_at":"2026-07-22T22:20:07Z","subjects":["Women","health","chronic illness","living without a diagnosis","qualitative","symbolic interactionism","agency","context","intersectionality","System of Illness Uncertainty"],"languages":[],"rights":["In Copyright"],"rights_urls":["http://rightsstatements.org/vocab/InC/1.0/"],"identifier_entries":[{"key":"dc:identifier.other","label":"Dc Identifier Other","values":["vt_gsexam:11475"],"render_values":[{"text":"vt_gsexam:11475","href":null,"code":true}]}]},"links":{"outbound_url":"http://hdl.handle.net/10919/78012","outbound_label":"Handle","outbound_source":"dc:identifier.uri"},"metadata_groups":[{"id":"people","label":"People","entries":[{"key":"dc:contributor.committeechair","label":"Committee Chair","values":["Allen, Katherine R."]},{"key":"dc:contributor.committeemember","label":"Committee Member","values":["Kaestle, Christine E.","Roberto, Karen A.","Few-Demo, April L."]},{"key":"dc:contributor.department","label":"Department","values":["Human Development"]},{"key":"dc:creator","label":"Author","values":["Potter, Emma C."]}]},{"id":"academic_context","label":"Academic Context","entries":[{"key":"dc:date.accessioned","label":"Dc Date Accessioned","values":["2017-06-10T08:01:31Z"]},{"key":"dc:date.available","label":"Dc Date Available","values":["2017-06-10T08:01:31Z"]},{"key":"dc:date.issued","label":"Date","values":["2017-06-09"]},{"key":"dc:publisher","label":"Institution","values":["Virginia Tech"]},{"key":"dc:type","label":"Dc Type","values":["Dissertation"]},{"key":"thesis:degree_discipline","label":"Discipline","values":["Human Development"]},{"key":"thesis:degree_level","label":"Degree Level","values":["doctoral"]},{"key":"thesis:degree_name","label":"Degree Name","values":["Ph. D."]},{"key":"thesis:institution_name","label":"Thesis Institution Name","values":["Virginia Polytechnic Institute and State University"]}]},{"id":"subjects_keywords","label":"Subjects and Keywords","entries":[{"key":"dc:subject","label":"Dc Subject","values":["Women","health","chronic illness","living without a diagnosis","qualitative","symbolic interactionism","agency","context","intersectionality","System of Illness Uncertainty"]}]},{"id":"language_rights","label":"Language and Rights","entries":[{"key":"dc:rights","label":"Dc Rights","values":["In Copyright"]},{"key":"dc:rights.uri","label":"Rights URI","values":["http://rightsstatements.org/vocab/InC/1.0/"]}]},{"id":"identifiers","label":"Identifiers","entries":[{"key":"dc:identifier.other","label":"Dc Identifier Other","values":["vt_gsexam:11475"]},{"key":"dc:identifier.uri","label":"Identifier URI","values":["http://hdl.handle.net/10919/78012"]}]},{"id":"additional","label":"Additional Metadata","entries":[{"key":"dc:description.abstract","label":"Abstract","values":["Those living without a diagnosis reside in an invisible margin of health and family research. The purpose of this study was to explore illness uncertainty as experienced by women and their families in the United States. I examined illness uncertainty through a feminist ecological interactionist (FEI) approach with three core constructs: interaction, agency, and context. I conducted narrative-focused, semi-structured interviews with 15 women (aged 25-46) and 11 family members (aged 22 to 62) identified by each woman and completed a constant comparative grounded theory analysis. The findings revealed women's lived experiences with symptoms and social support, interactions with the medical system, and agency in the context of such uncertainty. Findings also model a System of Illness Uncertainty that contends that women's experiences with illness uncertainty is an endless process that changes over time. In the System of Illness Uncertainty, women were Doubters, Resisters, Persisters, or Burnouts; all women experienced a paradigm shift regarding the Western health system as a result of their experiences. This research adds to the knowledge base on individuals who occupy spaces between the legitimized, diagnosable ill and the symptom-free healthy. Implications affect not only individuals and their families, but the politics of Western medical establishments."]},{"key":"dc:description.abstractgeneral","label":"General Abstract","values":["Those living without a diagnosis are often outside of health and family research. The purpose of this study was to explore women and their families’ experiences of illness uncertainty (i.e., living without a diagnosis) in the United States. I examined illness uncertainty through a feminist ecological interactionist (FEI) approach guided by three core constructs: interaction, agency, and context. I conducted semi-structured interviews with 15 women (aged 25-46) and 11 family members (aged 22 to 62) identified by each woman and completed a constant comparative grounded theory analysis. The findings revealed women’s lived experiences with symptoms and social support, interactions with the Western health system, and agency in the context of such uncertainty. I put forward a System of Illness Uncertainty that contends that women’s experiences with illness uncertainty is an endless process that changes over time; women were Doubters, Resisters, Persisters, or Burnouts. I argue that all women experienced a shift in thinking about the Western health system as a result of their experiences. This research adds to the knowledge base on individuals who occupy spaces between the legitimized, diagnosable ill and the symptom-free healthy. Implications affect not only individuals and their families, but the politics of Western medical establishments."]},{"key":"dc:description.degree","label":"Dc Description Degree","values":["Ph. D."]},{"key":"dc:format.medium","label":"Dc Format Medium","values":["ETD"]},{"key":"dc:title","label":"Title","values":["Agency in the Midst of Illness Uncertainty: How Women and Families Live without a Diagnosis"]}]}],"canonical_facts":{"dc:contributor.committeechair":["Allen, Katherine R."],"dc:contributor.committeemember":["Kaestle, Christine E.","Roberto, Karen A.","Few-Demo, April L."],"dc:contributor.department":["Human Development"],"dc:creator":["Potter, Emma C."],"dc:date.accessioned":["2017-06-10T08:01:31Z"],"dc:date.available":["2017-06-10T08:01:31Z"],"dc:date.issued":["2017-06-09"],"dc:description.abstract":["Those living without a diagnosis reside in an invisible margin of health and family research. The purpose of this study was to explore illness uncertainty as experienced by women and their families in the United States. I examined illness uncertainty through a feminist ecological interactionist (FEI) approach with three core constructs: interaction, agency, and context. I conducted narrative-focused, semi-structured interviews with 15 women (aged 25-46) and 11 family members (aged 22 to 62) identified by each woman and completed a constant comparative grounded theory analysis. The findings revealed women's lived experiences with symptoms and social support, interactions with the medical system, and agency in the context of such uncertainty. Findings also model a System of Illness Uncertainty that contends that women's experiences with illness uncertainty is an endless process that changes over time. In the System of Illness Uncertainty, women were Doubters, Resisters, Persisters, or Burnouts; all women experienced a paradigm shift regarding the Western health system as a result of their experiences. This research adds to the knowledge base on individuals who occupy spaces between the legitimized, diagnosable ill and the symptom-free healthy. Implications affect not only individuals and their families, but the politics of Western medical establishments."],"dc:description.abstractgeneral":["Those living without a diagnosis are often outside of health and family research. The purpose of this study was to explore women and their families’ experiences of illness uncertainty (i.e., living without a diagnosis) in the United States. I examined illness uncertainty through a feminist ecological interactionist (FEI) approach guided by three core constructs: interaction, agency, and context. I conducted semi-structured interviews with 15 women (aged 25-46) and 11 family members (aged 22 to 62) identified by each woman and completed a constant comparative grounded theory analysis. The findings revealed women’s lived experiences with symptoms and social support, interactions with the Western health system, and agency in the context of such uncertainty. I put forward a System of Illness Uncertainty that contends that women’s experiences with illness uncertainty is an endless process that changes over time; women were Doubters, Resisters, Persisters, or Burnouts. I argue that all women experienced a shift in thinking about the Western health system as a result of their experiences. This research adds to the knowledge base on individuals who occupy spaces between the legitimized, diagnosable ill and the symptom-free healthy. Implications affect not only individuals and their families, but the politics of Western medical establishments."],"dc:description.degree":["Ph. D."],"dc:format.medium":["ETD"],"dc:identifier.other":["vt_gsexam:11475"],"dc:identifier.uri":["http://hdl.handle.net/10919/78012"],"dc:publisher":["Virginia Tech"],"dc:rights":["In Copyright"],"dc:rights.uri":["http://rightsstatements.org/vocab/InC/1.0/"],"dc:subject":["Women","health","chronic illness","living without a diagnosis","qualitative","symbolic interactionism","agency","context","intersectionality","System of Illness Uncertainty"],"dc:title":["Agency in the Midst of Illness Uncertainty: How Women and Families Live without a Diagnosis"],"dc:type":["Dissertation"],"thesis:degree_discipline":["Human Development"],"thesis:degree_level":["doctoral"],"thesis:degree_name":["Ph. D."],"thesis:institution_name":["Virginia Polytechnic Institute and State University"]},"updated_at":"2026-07-22T22:20:07Z"}