Nursing Care for Outpatients with Multiple Sclerosis: Complex Approach and Medical-Social Aspects //// Сестрински грижи при пациенти с множествена склероза - комплексен подход и медико­ социални аспекти

The purpose of this thesis is to investigate the medical and social aspects of nursing in outpatient care for MS patients and to develop an algorithm for complex nursing activities and a model for a training centre for nurses involved with these patients. The following tasks have been formulated: to investigate the medical and social needs of patients with newly diagnosed MS and of those on disease-modifying treatment; to investigate the views of patients' relatives about the need and benefits of specialized nursing care; to investigate the assessment of general practitioners, neurologists and healthcare specialists regarding the provided complex care; to study the quality of life self-assessment in MS patients with the MSQL-54 questionnaire; to investigate the opinion of MS patients who have undergone individual self-injection training. The study explored the opinion of 296 responders divided into 4 groups. The following methods have been applied: sociological, including documentary; medicostatistical inquiries, SWOT analysis; own experience. Contributions: The medical and social needs of MS patients of timely and complete information on the choice of medication, training and monitoring the condition during the course of the disease were established; New information has been obtained through the MSQOL-54 questionnaire; The role of the nurse in the overall process of planning long-term care in relation to the course of the disease - training, monitoring and evaluation of the outcomes of care - was established; The need for measures to overcome the barriers of inequality between MS patients with complex quality health care has been demonstrated. An algorithm for complex nursing activities aimed at MS patients with outpatient care has been developed, which improves the monitoring, treatment and social adaptation of patients with MS by unifying and regulating certain activities. A Model of a Training Centre for Specialized Training for Healthcare Professionals has been proposed that provides highly specialized nursing services for MS patients and sustainable product development through ongoing nursing training. Participation in a team of authors to compile a patient's diary to track regular injections of Interferon Beta and to develop a step-by-step guide to the new Interferon Beta system.

Authors dc:creator

• Staneva, Violeta
• Станева, Виолета

• Multiple Sclerosis
• nursing care
• newly diagnosed MS
• MSQOL-54 questionnaire
• patients’ step-by-step guide
• Здравни грижи / Auxiliary health care, Nursing

Repository record dc:identifier

http://repository.mu-varna.bg/handle/nls/299

OAI identifier oai:identifier

oai:repository.mu-varna.bg:nls/299