{"id":{"repo_id":"utswmed","oai_identifier":"oai:utswmed-ir.tdl.org:2152.5/225"},"canonical_url":"https://search.dev.ndltd.org/etd/utswmed/oai:utswmed-ir.tdl.org:2152.5/225","repository":{"repo_id":"utswmed","name":"University of Texas Southwestern Medical Center","base_url":"https://utswmed-ir.tdl.org/server/oai/request"},"display":{"title":"Utilizing Discrepancy Theory to Quantitate Quality of Life in Chronically Ill Children","abstract":"BACKGROUND: Quality of Life (QoL) is a ubiquitous yet poorly defined concept in clinical medicine. Many widely used instruments to measure QoL lack a theoretical basis and therefore may not provide accurate assessment. Multiple discrepancy theory advocates that net satisfaction is determined by evaluating the difference or gap between current life circumstances and a standard of comparison. A QoL instrument based on discrepancy theory has been developed by our research group to evaluate children with chronic diseases. OBJECTIVE: To evaluate the parent-child agreement for discrepancy theory items on the GAP QoL Questionnaire for children with chronic illness. DESIGN/METHODS: Children and parents were recruited for this pilot study when attending regularly scheduled appointments in a variety of outpatient clinics at The Hospital for Sick Children (SickKids). Trained interviewers administered the GAP Questionnaire to parents- and to their children if older than age 10. Children and parents answered the questionnaire blind to each other's answers. RESULTS: 77 participants (28 children, 49 parents: 24 parent/child pairs) were enrolled. The most important items for determining QoL generated by the GAP Questionnaire differed for children and parents (See Table). The overall weighted Kappa value for parent-child agreement on the GAP Questionnaire was 0.349 indicating moderate agreement. Items with the highest agreement were having pets (0.6962), getting along with brothers/sisters (0.5886), and the place religion has in your life (0.549).","abstract_html":"BACKGROUND: Quality of Life (QoL) is a ubiquitous yet poorly defined concept in clinical medicine. Many widely used instruments to measure QoL lack a theoretical basis and therefore may not provide accurate assessment. Multiple discrepancy theory advocates that net satisfaction is determined by evaluating the difference or gap between current life circumstances and a standard of comparison. A QoL instrument based on discrepancy theory has been developed by our research group to evaluate children with chronic diseases. OBJECTIVE: To evaluate the parent-child agreement for discrepancy theory items on the GAP QoL Questionnaire for children with chronic illness. DESIGN/METHODS: Children and parents were recruited for this pilot study when attending regularly scheduled appointments in a variety of outpatient clinics at The Hospital for Sick Children (SickKids). Trained interviewers administered the GAP Questionnaire to parents- and to their children if older than age 10. Children and parents answered the questionnaire blind to each other's answers. RESULTS: 77 participants (28 children, 49 parents: 24 parent/child pairs) were enrolled. The most important items for determining QoL generated by the GAP Questionnaire differed for children and parents (See Table). The overall weighted Kappa value for parent-child agreement on the GAP Questionnaire was 0.349 indicating moderate agreement. Items with the highest agreement were having pets (0.6962), getting along with brothers/sisters (0.5886), and the place religion has in your life (0.549).","abstract_has_math":false,"creators":["Webb, Bryn"],"institution":null,"degree_name":null,"degree_level":null,"degree_discipline":null,"degree_department":null,"school":null,"contributors":["Birod, Carlos E."],"advisors":[],"committee_chairs":[],"committee_members":[],"year":2010,"date_issued":"2010-07-12T16:21:43Z","date_published":"2010-07-12T16:21:43Z","updated_at":"2026-07-24T05:52:29Z","subjects":["Perception","Attitude","Quality of Life","Chronic Illnesses"],"languages":["en"],"rights":[],"rights_urls":[],"identifier_entries":[{"key":"dc:identifier","label":"Identifier","values":["183887850"],"render_values":[{"text":"183887850","href":null,"code":true}]}]},"links":{"outbound_url":"https://hdl.handle.net/2152.5/225","outbound_label":"Handle","outbound_source":"dc:identifier"},"metadata_groups":[{"id":"people","label":"People","entries":[{"key":"dc:contributor","label":"Contributor","values":["Birod, Carlos E."]},{"key":"dc:creator","label":"Author","values":["Webb, Bryn"]}]},{"id":"academic_context","label":"Academic Context","entries":[{"key":"dc:date","label":"Dc Date","values":["2010-07-12T16:21:43Z","2007-12-03"]},{"key":"dc:type","label":"Dc Type","values":["Thesis","Text","dissertation"]}]},{"id":"subjects_keywords","label":"Subjects and Keywords","entries":[{"key":"dc:subject","label":"Dc Subject","values":["Perception","Attitude","Quality of Life","Chronic Illnesses"]}]},{"id":"language_rights","label":"Language and Rights","entries":[{"key":"dc:language","label":"Dc Language","values":["en"]}]},{"id":"identifiers","label":"Identifiers","entries":[{"key":"dc:identifier","label":"Identifier","values":["https://hdl.handle.net/2152.5/225","183887850"]}]},{"id":"additional","label":"Additional Metadata","entries":[{"key":"dc:description","label":"Description","values":["BACKGROUND: Quality of Life (QoL) is a ubiquitous yet poorly defined concept in clinical medicine. Many widely used instruments to measure QoL lack a theoretical basis and therefore may not provide accurate assessment. Multiple discrepancy theory advocates that net satisfaction is determined by evaluating the difference or gap between current life circumstances and a standard of comparison. A QoL instrument based on discrepancy theory has been developed by our research group to evaluate children with chronic diseases. OBJECTIVE: To evaluate the parent-child agreement for discrepancy theory items on the GAP QoL Questionnaire for children with chronic illness. DESIGN/METHODS: Children and parents were recruited for this pilot study when attending regularly scheduled appointments in a variety of outpatient clinics at The Hospital for Sick Children (SickKids). Trained interviewers administered the GAP Questionnaire to parents- and to their children if older than age 10. Children and parents answered the questionnaire blind to each other's answers. RESULTS: 77 participants (28 children, 49 parents: 24 parent/child pairs) were enrolled. The most important items for determining QoL generated by the GAP Questionnaire differed for children and parents (See Table). The overall weighted Kappa value for parent-child agreement on the GAP Questionnaire was 0.349 indicating moderate agreement. Items with the highest agreement were having pets (0.6962), getting along with brothers/sisters (0.5886), and the place religion has in your life (0.549)."]},{"key":"dc:format","label":"Dc Format","values":["Electronic","application/pdf","born digital"]},{"key":"dc:title","label":"Title","values":["Utilizing Discrepancy Theory to Quantitate Quality of Life in Chronically Ill Children"]}]}],"canonical_facts":{"dc:contributor":["Birod, Carlos E."],"dc:creator":["Webb, Bryn"],"dc:date":["2010-07-12T16:21:43Z","2007-12-03"],"dc:description":["BACKGROUND: Quality of Life (QoL) is a ubiquitous yet poorly defined concept in clinical medicine. Many widely used instruments to measure QoL lack a theoretical basis and therefore may not provide accurate assessment. Multiple discrepancy theory advocates that net satisfaction is determined by evaluating the difference or gap between current life circumstances and a standard of comparison. A QoL instrument based on discrepancy theory has been developed by our research group to evaluate children with chronic diseases. OBJECTIVE: To evaluate the parent-child agreement for discrepancy theory items on the GAP QoL Questionnaire for children with chronic illness. DESIGN/METHODS: Children and parents were recruited for this pilot study when attending regularly scheduled appointments in a variety of outpatient clinics at The Hospital for Sick Children (SickKids). Trained interviewers administered the GAP Questionnaire to parents- and to their children if older than age 10. Children and parents answered the questionnaire blind to each other's answers. RESULTS: 77 participants (28 children, 49 parents: 24 parent/child pairs) were enrolled. The most important items for determining QoL generated by the GAP Questionnaire differed for children and parents (See Table). The overall weighted Kappa value for parent-child agreement on the GAP Questionnaire was 0.349 indicating moderate agreement. Items with the highest agreement were having pets (0.6962), getting along with brothers/sisters (0.5886), and the place religion has in your life (0.549)."],"dc:format":["Electronic","application/pdf","born digital"],"dc:identifier":["https://hdl.handle.net/2152.5/225","183887850"],"dc:language":["en"],"dc:subject":["Perception","Attitude","Quality of Life","Chronic Illnesses"],"dc:title":["Utilizing Discrepancy Theory to Quantitate Quality of Life in Chronically Ill Children"],"dc:type":["Thesis","Text","dissertation"]},"updated_at":"2026-07-24T05:52:29Z"}