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University of Texas Health Science Center at Houston

Genetics In The Nicu: Nurses’ Perceived Knowledge and Desired Education

Abstract

dc:description.abstract

<p>A large proportion of infants admitted to neonatal intensive care units (NICUs) have genetic conditions. NICU nurses play an important role in providing comprehensive care to these patients and their families. Previous research has demonstrated gaps exist in the genetics knowledge of nurses and that they lack comfort applying genetics information to clinical practice, but no research has been done assessing the knowledge of or comfort with genetics of NICU nurses specifically. NICU nurses (n=122) completed an online survey assessing their perceived knowledge of genetics, comfort with clinical scenarios involving genetics, and desired genetics education. Participants reported the highest levels of knowledge of the common trisomies (Down Syndrome, Trisomy 18, Trisomy 13), and genetic testing was a general area of weakness. Over 75% of respondents’ overall comfort scores indicated they felt generally uncomfortable with scenarios involving genetics. Perceived knowledge and overall comfort were both impacted by highest degree received, how well prepared a nurse felt by the genetics education they received in their nursing training, and having a close relationship to someone with a genetic condition. Almost all respondents (96%, n=117) desired additional genetics knowledge, with specific interest in genetic conditions encountered in the NICU, genetic testing, and education resources. Gaps exist in the genetics knowledge of neonatal nurses in our cohort, and their overall comfort working with clinical scenarios involving genetics was low. There is a great deal of interest in additional genetics education to support NICU nurses in working with this patient population, and continuing education opportunities should be provided to help them serve this patient population with confidence.</p>

Degree

thesis:*
Name thesis:degree_name
Masters of Science (MS)
Level thesis:degree_level
Thesis (MS)
Year dc:date.available
2021

Author and committee

dc:creator, dc:contributor.*
Authors dc:creator
  • Shields, Kathleen
  • <p>0000-0002-5782-0785</p>
Contributors dc:contributor
  • Kathryn Gunther
  • Jennifer Czerwinski
  • Tracie Dauwe

Subjects

dc:subject × 10

Identifiers

dc:identifier.*
OAI identifier oai:identifier
oai:digitalcommons.library.tmc.edu:utgsbs_dissertations-2159

Chain of custody

source
Harvested from
University of Texas Health Science Center at Houston
Base URL
digitalcommons.library.tmc.edu/do/oai/
Last updated
2026-07-24
Source record
OAI-PMH GetRecord
citation

Shields, Kathleen; <p>0000-0002-5782-0785</p>. Genetics In The Nicu: Nurses’ Perceived Knowledge and Desired Education. Thesis (MS) thesis, 2021. https://digitalcommons.library.tmc.edu/utgsbs_dissertations/1102