University of Texas Health Science Center at Houston
Influence of Genetic Counselor Personal Or Family Medical History On Genetic Counseling Specialization and Practice
Abstract
dc:description.abstract<p>A personal or family medical history inherently becomes part of a genetic counselor’s life story. Yet the degree to which a counselor’s experience influences his or her specialty choice and their psychosocial practice is unexplored. A medical diagnosis may foster a counselor’s capacity for greater empathy, understanding and rapport-building self-disclosure. Conversely, it could lead to interruptive countertransference, compassion fatigue, and eventually burnout. However, research has not specifically investigated this intersection. Therefore, the aim of this study was to explore the impact of a genetic counselor’s personal or family medical history on his or her choice of practice area, as well as the perceived impact on their psychosocial work within sessions. Members of the National Society of Genetic Counselors were recruited to complete an anonymous online survey sent via a research recruitment email. Of the 69 survey respondents that met inclusion criteria, 23 volunteered for and completed subsequent telephone interviews. Open-ended responses to the interview questions were transcribed and analyzed by the principal investigator using inductive analysis. Interview participants were more likely to be attracted to a specialty possessing overlap with their medical history (<em>n</em>=15) and attributed many of their psychosocial strengths to their personal and/or family medical experience, such as increased empathy and a more expansive scope of how they cared for the patient (<em>n</em>=21). However, many counselors indicated that their medical histories did not frequently influence their practice, with 14 participants initially denying or downplaying use of self-disclosure. Contradictory to their assertions, the majority of participants (<em>n</em>=19) gave at least one example of self-disclosure, whether indirect, prompted, support-motivated, or direct. Importantly, 20 participants named or illustrated countertransference. This study highlights that while medical histories can become a positive asset in a genetic counselor’s care for patients, they require a counselor’s diligent attentiveness to honest self-reflection.</p>
Degree
thesis:*- Name thesis:degree_name
- Masters of Science (MS)
- Level thesis:degree_level
- Thesis (MS)
- Year dc:date.available
- 2020
Author and committee
dc:creator, dc:contributor.*- Authors dc:creator
-
- Amos, Kaitlyn K, MS
- <p>0000-0003-2703-6508</p>
- Contributors dc:contributor
-
- Claire Singletary, MS, CGC
- Patricia McCarthy Veach, PhD, LP
- Chelsea Wagner, MS CGC
Subjects
dc:subject × 7Identifiers
dc:identifier.*- Repository record dc:identifier
- https://digitalcommons.library.tmc.edu/utgsbs_dissertations/1049
- OAI identifier oai:identifier
- oai:digitalcommons.library.tmc.edu:utgsbs_dissertations-2103