{"id":{"repo_id":"umn","oai_identifier":"oai:conservancy.umn.edu:11299/215126"},"canonical_url":"https://search.dev.ndltd.org/etd/umn/oai:conservancy.umn.edu:11299/215126","repository":{"repo_id":"umn","name":"University of Minnesota","base_url":"https://conservancy.umn.edu/server/oai/request"},"display":{"title":"The Rhetorical Making Of An Illness: Medical Refusal, Trope, And Improvisation In A Somali Women'S Health Center","abstract":"This ethnography examines the ways that individuals and communities come to understand autism, specifically, and health and illness, more broadly, and how these understandings influence medical decision-making. This study, developed in partnership with a Somali women's health center, asks how Somali parents understand autism, use services, and navigate divides between biomedical and other forms of care. To do so, I explore and rhetorically analyze three sites of health-related participation: 1.) public health communication outreach during the 2017 measles outbreak in Minnesota. 2.) the provision of a person-centered pilot grant to Somali families with children with autism, and 3.) alternative healthcare relationships and practices grounded in an understanding of autism as caused by imbalances in the microbiome. I offer three concepts--the situated refusal, bureaucratic literacy, and diagnosis as rhetorical trope--that can theorize health decision-making and can inform policy initiatives toward more accessible medical and social service procedures.","abstract_html":"This ethnography examines the ways that individuals and communities come to understand autism, specifically, and health and illness, more broadly, and how these understandings influence medical decision-making. This study, developed in partnership with a Somali women's health center, asks how Somali parents understand autism, use services, and navigate divides between biomedical and other forms of care. To do so, I explore and rhetorically analyze three sites of health-related participation: 1.) public health communication outreach during the 2017 measles outbreak in Minnesota. 2.) the provision of a person-centered pilot grant to Somali families with children with autism, and 3.) alternative healthcare relationships and practices grounded in an understanding of autism as caused by imbalances in the microbiome. I offer three concepts--the situated refusal, bureaucratic literacy, and diagnosis as rhetorical trope--that can theorize health decision-making and can inform policy initiatives toward more accessible medical and social service procedures.","abstract_has_math":false,"creators":["Campeau, Kari"],"institution":null,"degree_name":null,"degree_level":null,"degree_discipline":null,"degree_department":null,"school":null,"contributors":[],"advisors":[],"committee_chairs":[],"committee_members":[],"year":2020,"date_issued":"2020-05","date_published":"2020-05","updated_at":"2026-07-24T05:19:58Z","subjects":["Community-Based Participatory Research","Health Communication","Health Policy","Medical Rhetoric","Vaccination"],"languages":["en"],"rights":[],"rights_urls":[],"identifier_entries":[]},"links":{"outbound_url":"http://hdl.handle.net/11299/215126","outbound_label":"Handle","outbound_source":"dc:identifier.uri"},"metadata_groups":[{"id":"people","label":"People","entries":[{"key":"dc:creator","label":"Author","values":["Campeau, Kari"]}]},{"id":"academic_context","label":"Academic Context","entries":[{"key":"dc:date.accessioned","label":"Dc Date Accessioned","values":["2020-08-25T13:45:34Z"]},{"key":"dc:date.available","label":"Dc Date Available","values":["2020-08-25T13:45:34Z"]},{"key":"dc:date.issued","label":"Date","values":["2020-05"]},{"key":"dc:type","label":"Dc Type","values":["Thesis or Dissertation"]}]},{"id":"subjects_keywords","label":"Subjects and Keywords","entries":[{"key":"dc:subject","label":"Dc Subject","values":["Community-Based Participatory Research","Health Communication","Health Policy","Medical Rhetoric","Vaccination"]}]},{"id":"language_rights","label":"Language and Rights","entries":[{"key":"dc:language.iso","label":"Language (ISO)","values":["en"]}]},{"id":"identifiers","label":"Identifiers","entries":[{"key":"dc:identifier.uri","label":"Identifier URI","values":["http://hdl.handle.net/11299/215126"]}]},{"id":"additional","label":"Additional Metadata","entries":[{"key":"dc:description","label":"Description","values":["University of Minnesota Ph.D. dissertation.May 2020. Major: Rhetoric and Scientific and Technical Communication. Advisors: Mary Schuster, Lee-Ann Breuch. 1 computer file (PDF); ix, 456 pages."]},{"key":"dc:description.abstract","label":"Abstract","values":["This ethnography examines the ways that individuals and communities come to understand autism, specifically, and health and illness, more broadly, and how these understandings influence medical decision-making. This study, developed in partnership with a Somali women's health center, asks how Somali parents understand autism, use services, and navigate divides between biomedical and other forms of care. To do so, I explore and rhetorically analyze three sites of health-related participation: 1.) public health communication outreach during the 2017 measles outbreak in Minnesota. 2.) the provision of a person-centered pilot grant to Somali families with children with autism, and 3.) alternative healthcare relationships and practices grounded in an understanding of autism as caused by imbalances in the microbiome. I offer three concepts--the situated refusal, bureaucratic literacy, and diagnosis as rhetorical trope--that can theorize health decision-making and can inform policy initiatives toward more accessible medical and social service procedures."]},{"key":"dc:title","label":"Title","values":["The Rhetorical Making Of An Illness: Medical Refusal, Trope, And Improvisation In A Somali Women'S Health Center"]}]}],"canonical_facts":{"dc:creator":["Campeau, Kari"],"dc:date.accessioned":["2020-08-25T13:45:34Z"],"dc:date.available":["2020-08-25T13:45:34Z"],"dc:date.issued":["2020-05"],"dc:description":["University of Minnesota Ph.D. dissertation.May 2020. Major: Rhetoric and Scientific and Technical Communication. Advisors: Mary Schuster, Lee-Ann Breuch. 1 computer file (PDF); ix, 456 pages."],"dc:description.abstract":["This ethnography examines the ways that individuals and communities come to understand autism, specifically, and health and illness, more broadly, and how these understandings influence medical decision-making. This study, developed in partnership with a Somali women's health center, asks how Somali parents understand autism, use services, and navigate divides between biomedical and other forms of care. To do so, I explore and rhetorically analyze three sites of health-related participation: 1.) public health communication outreach during the 2017 measles outbreak in Minnesota. 2.) the provision of a person-centered pilot grant to Somali families with children with autism, and 3.) alternative healthcare relationships and practices grounded in an understanding of autism as caused by imbalances in the microbiome. I offer three concepts--the situated refusal, bureaucratic literacy, and diagnosis as rhetorical trope--that can theorize health decision-making and can inform policy initiatives toward more accessible medical and social service procedures."],"dc:identifier.uri":["http://hdl.handle.net/11299/215126"],"dc:language.iso":["en"],"dc:subject":["Community-Based Participatory Research","Health Communication","Health Policy","Medical Rhetoric","Vaccination"],"dc:title":["The Rhetorical Making Of An Illness: Medical Refusal, Trope, And Improvisation In A Somali Women'S Health Center"],"dc:type":["Thesis or Dissertation"]},"updated_at":"2026-07-24T05:19:58Z"}