{"id":{"repo_id":"uiuc","oai_identifier":"oai:www.ideals.illinois.edu:2142/125827"},"canonical_url":"https://search.dev.ndltd.org/etd/uiuc/oai:www.ideals.illinois.edu:2142/125827","repository":{"repo_id":"uiuc","name":"University of Illinois - Urbana-Champaign","base_url":"https://www.ideals.illinois.edu/oai-pmh"},"display":{"title":"Existing through dis-ease: Autoethnographic renderings of disability experiences.","abstract":"Submission published under a 24 month embargo labeled 'Closed Access', the embargo will last until 2026-08-01","abstract_html":"Submission published under a 24 month embargo labeled &#x27;Closed Access&#x27;, the embargo will last until 2026-08-01","abstract_has_math":false,"creators":["Bhalla, Shivani"],"institution":"University of Illinois at Urbana-Champaign","degree_name":"Ph.D.","degree_level":"Dissertation","degree_discipline":"Art Education","degree_department":null,"school":null,"contributors":["Travis, Sarah","Lucero, Jorge","Nguyen, Mimi Thi","Adamson, Brynn C.","Wexler, Alice"],"advisors":[],"committee_chairs":[],"committee_members":[],"year":2024,"date_issued":"2024-08","date_published":"2024-08","updated_at":"2026-07-22T22:25:02Z","subjects":["Critical Disability Studies","Disability Identity","Narrative","Arts-based Research","Autoethnography","Disability"],"languages":["en","eng"],"rights":["Copyright 2024 Shivani Bhalla"],"rights_urls":[],"identifier_entries":[]},"links":{"outbound_url":"https://hdl.handle.net/2142/125827","outbound_label":"Handle","outbound_source":"dc:identifier"},"metadata_groups":[{"id":"people","label":"People","entries":[{"key":"dc:contributor","label":"Contributor","values":["Travis, Sarah","Lucero, Jorge","Nguyen, Mimi Thi","Adamson, Brynn C.","Wexler, Alice"]},{"key":"dc:creator","label":"Author","values":["Bhalla, Shivani"]}]},{"id":"academic_context","label":"Academic Context","entries":[{"key":"dc:date","label":"Dc Date","values":["2024-08","2024-07-12"]},{"key":"dc:type","label":"Dc Type","values":["text","Thesis"]},{"key":"thesis:degree_discipline","label":"Discipline","values":["Art Education"]},{"key":"thesis:degree_level","label":"Degree Level","values":["Dissertation"]},{"key":"thesis:degree_name","label":"Degree Name","values":["Ph.D."]},{"key":"thesis:institution_name","label":"Thesis Institution Name","values":["University of Illinois at Urbana-Champaign"]}]},{"id":"subjects_keywords","label":"Subjects and Keywords","entries":[{"key":"dc:subject","label":"Dc Subject","values":["Critical Disability Studies","Disability Identity","Narrative","Arts-based Research","Autoethnography","Disability"]}]},{"id":"language_rights","label":"Language and Rights","entries":[{"key":"dc:language","label":"Dc Language","values":["en","eng"]},{"key":"dc:rights","label":"Dc Rights","values":["Copyright 2024 Shivani Bhalla"]}]},{"id":"identifiers","label":"Identifiers","entries":[{"key":"dc:identifier","label":"Identifier","values":["https://hdl.handle.net/2142/125827"]}]},{"id":"additional","label":"Additional Metadata","entries":[{"key":"dc:description","label":"Description","values":["Submission published under a 24 month embargo labeled 'Closed Access', the embargo will last until 2026-08-01","The student, Shivani Bhalla, accepted the attached license on 2024-07-12 at 09:23.","The student, Shivani Bhalla, submitted this Dissertation for approval on 2024-07-12 at 10:08.","This Dissertation was approved for publication on 2024-07-12 at 15:52.","DSpace SAF Submission Ingestion Package generated from Vireo submission #21087 on 2025-02-04 at 21:25:55","In this arts-based autoethnographic research, I am exploring my personal experiences of living with chronic illness and witnessing my family’s disability experiences through art-making and narrative writing. By looking at my disability experiences through a critical disability studies lens (CDS) and especially from Alison Kaefer's (2013) Political/Relational model of disability, which elaborates on how disability is \"experienced in and through relationships\" (p. 81), I am situating my experiences within the disability experiences of my family members and alluding to how my parent's and grandparent’s disability had a direct impact on me while growing up in India, hence making a connection between disability and intergenerational trauma. Besides, I am also contextualizing my disability experiences within the social-cultural notions around disability in India (Ghia, 2002; Parekh, 2008) and addressing how my disability identity intersects with other minoritized identities such as a woman of color, an immigrant, and a carer for my mother in hospice. Conducting this research from my position as an art educator, researcher, and artist helped me establish the epistemological significance of art making in understanding and sharing the complexity of disability experiences. Hence, through this research I establish the importance of experiential narratives in creating scholarly forms of knowledge within art educational settings."]},{"key":"dc:format","label":"Dc Format","values":["application/pdf"]},{"key":"dc:title","label":"Title","values":["Existing through dis-ease: Autoethnographic renderings of disability experiences."]}]}],"canonical_facts":{"dc:contributor":["Travis, Sarah","Lucero, Jorge","Nguyen, Mimi Thi","Adamson, Brynn C.","Wexler, Alice"],"dc:creator":["Bhalla, Shivani"],"dc:date":["2024-08","2024-07-12"],"dc:description":["Submission published under a 24 month embargo labeled 'Closed Access', the embargo will last until 2026-08-01","The student, Shivani Bhalla, accepted the attached license on 2024-07-12 at 09:23.","The student, Shivani Bhalla, submitted this Dissertation for approval on 2024-07-12 at 10:08.","This Dissertation was approved for publication on 2024-07-12 at 15:52.","DSpace SAF Submission Ingestion Package generated from Vireo submission #21087 on 2025-02-04 at 21:25:55","In this arts-based autoethnographic research, I am exploring my personal experiences of living with chronic illness and witnessing my family’s disability experiences through art-making and narrative writing. By looking at my disability experiences through a critical disability studies lens (CDS) and especially from Alison Kaefer's (2013) Political/Relational model of disability, which elaborates on how disability is \"experienced in and through relationships\" (p. 81), I am situating my experiences within the disability experiences of my family members and alluding to how my parent's and grandparent’s disability had a direct impact on me while growing up in India, hence making a connection between disability and intergenerational trauma. Besides, I am also contextualizing my disability experiences within the social-cultural notions around disability in India (Ghia, 2002; Parekh, 2008) and addressing how my disability identity intersects with other minoritized identities such as a woman of color, an immigrant, and a carer for my mother in hospice. Conducting this research from my position as an art educator, researcher, and artist helped me establish the epistemological significance of art making in understanding and sharing the complexity of disability experiences. 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