{"id":{"repo_id":"uiuc","oai_identifier":"oai:www.ideals.illinois.edu:2142/125576"},"canonical_url":"https://search.dev.ndltd.org/etd/uiuc/oai:www.ideals.illinois.edu:2142/125576","repository":{"repo_id":"uiuc","name":"University of Illinois - Urbana-Champaign","base_url":"https://www.ideals.illinois.edu/oai-pmh"},"display":{"title":"The relationship between caregiver burden and participation in social engagement activities in older adult caregivers of persons with dementia","abstract":"Submission original under an indefinite embargo labeled 'Open Access'. The submission was exported from vireo on 2025-02-04 without embargo terms","abstract_html":"Submission original under an indefinite embargo labeled 'Open Access'. The submission was exported from vireo on 2025-02-04 without embargo terms","abstract_has_math":false,"creators":["Jones, Sarah"],"institution":"University of Illinois at Urbana-Champaign","degree_name":"M.A.","degree_level":"Thesis","degree_discipline":"Speech & Hearing Science","degree_department":null,"school":null,"contributors":["Mudar, Raksha A","Rogers, Wendy A","Raj, Minakshi"],"advisors":[],"committee_chairs":[],"committee_members":[],"year":2024,"date_issued":"2024-07-17","date_published":"2024-07-17","updated_at":"2026-07-22T22:25:02Z","subjects":["Family Caregiver","Dementia","Social Engagement","Older Adult"],"languages":["en","eng"],"rights":["Copyright 2024 Sarah Jones"],"rights_urls":[],"identifier_entries":[]},"links":{"outbound_url":"https://hdl.handle.net/2142/125576","outbound_label":"Handle","outbound_source":"dc:identifier"},"metadata_groups":[{"id":"people","label":"People","entries":[{"key":"dc:contributor","label":"Contributor","values":["Mudar, Raksha A","Rogers, Wendy A","Raj, Minakshi"]},{"key":"dc:creator","label":"Author","values":["Jones, Sarah"]}]},{"id":"academic_context","label":"Academic Context","entries":[{"key":"dc:date","label":"Dc Date","values":["2024-07-17","2024-08"]},{"key":"dc:type","label":"Dc Type","values":["text","Thesis"]},{"key":"thesis:degree_discipline","label":"Discipline","values":["Speech & Hearing Science"]},{"key":"thesis:degree_level","label":"Degree Level","values":["Thesis"]},{"key":"thesis:degree_name","label":"Degree Name","values":["M.A."]},{"key":"thesis:institution_name","label":"Thesis Institution Name","values":["University of Illinois at Urbana-Champaign"]}]},{"id":"subjects_keywords","label":"Subjects and Keywords","entries":[{"key":"dc:subject","label":"Dc Subject","values":["Family Caregiver","Dementia","Social Engagement","Older Adult"]}]},{"id":"language_rights","label":"Language and Rights","entries":[{"key":"dc:language","label":"Dc Language","values":["en","eng"]},{"key":"dc:rights","label":"Dc Rights","values":["Copyright 2024 Sarah Jones"]}]},{"id":"identifiers","label":"Identifiers","entries":[{"key":"dc:identifier","label":"Identifier","values":["https://hdl.handle.net/2142/125576"]}]},{"id":"additional","label":"Additional Metadata","entries":[{"key":"dc:description","label":"Description","values":["Submission original under an indefinite embargo labeled 'Open Access'. The submission was exported from vireo on 2025-02-04 without embargo terms","The student, Sarah Jones, accepted the attached license on 2024-07-07 at 20:16.","The student, Sarah Jones, submitted this Thesis for approval on 2024-07-07 at 20:24.","This Thesis was approved for publication on 2024-07-17 at 11:05.","DSpace SAF Submission Ingestion Package generated from Vireo submission #20973 on 2025-02-04 at 21:04:20","There are over 55 million individuals with dementia around the world who are supported by a caregiver at some stage. Most persons with dementia (PwD) are cared for by a family member or a friend, referred to as informal caregiver. Thirty percent of these caregivers are over the age of 65 and take on additional responsibilities as the needs of the person they are caring for increase leading to caregiver burden. As the burden of caregiving increases, caregivers experience physical, cognitive, emotional, and social health problems. Social engagement can be a mediating factor to lower caregiver burden and associated health issues; however, there is a paucity of literature on the links between social engagement and caregiver burden especially in older caregivers. Therefore, this study characterized social engagement activities of older adult caregivers of PwD and examined the relationship between caregiver burden and social engagement. Participants included 30 informal caregivers of PwD over the age of 60. These caregivers were recruited from a larger intervention study on social engagement. Data obtained at baseline were used for the purposes of this study. The caregivers completed a comprehensive online assessment that included participant characterization measures, caregiver-related measures, social engagement measures, and a social activity related interview. Results revealed moderate degree of loneliness on the UCLA loneliness scale and a high degree of social isolation on the Friendship scale. Overall, caregivers participated less frequently in group social activities although they rated it as their favorite. Serving as a caregiver for more than 5 years was significantly correlated with loneliness and social isolation. Furthermore, higher caregiver burden was associated with higher levels of social isolation. Healthcare professionals should not only learn about the impact of caregiver burden on social health of caregivers but should educate caregivers on the importance of finding ways to connect with others socially to minimize the negative impact on their health and well-being."]},{"key":"dc:format","label":"Dc Format","values":["application/pdf"]},{"key":"dc:title","label":"Title","values":["The relationship between caregiver burden and participation in social engagement activities in older adult caregivers of persons with dementia"]}]}],"canonical_facts":{"dc:contributor":["Mudar, Raksha A","Rogers, Wendy A","Raj, Minakshi"],"dc:creator":["Jones, Sarah"],"dc:date":["2024-07-17","2024-08"],"dc:description":["Submission original under an indefinite embargo labeled 'Open Access'. The submission was exported from vireo on 2025-02-04 without embargo terms","The student, Sarah Jones, accepted the attached license on 2024-07-07 at 20:16.","The student, Sarah Jones, submitted this Thesis for approval on 2024-07-07 at 20:24.","This Thesis was approved for publication on 2024-07-17 at 11:05.","DSpace SAF Submission Ingestion Package generated from Vireo submission #20973 on 2025-02-04 at 21:04:20","There are over 55 million individuals with dementia around the world who are supported by a caregiver at some stage. Most persons with dementia (PwD) are cared for by a family member or a friend, referred to as informal caregiver. Thirty percent of these caregivers are over the age of 65 and take on additional responsibilities as the needs of the person they are caring for increase leading to caregiver burden. As the burden of caregiving increases, caregivers experience physical, cognitive, emotional, and social health problems. Social engagement can be a mediating factor to lower caregiver burden and associated health issues; however, there is a paucity of literature on the links between social engagement and caregiver burden especially in older caregivers. Therefore, this study characterized social engagement activities of older adult caregivers of PwD and examined the relationship between caregiver burden and social engagement. Participants included 30 informal caregivers of PwD over the age of 60. These caregivers were recruited from a larger intervention study on social engagement. Data obtained at baseline were used for the purposes of this study. The caregivers completed a comprehensive online assessment that included participant characterization measures, caregiver-related measures, social engagement measures, and a social activity related interview. Results revealed moderate degree of loneliness on the UCLA loneliness scale and a high degree of social isolation on the Friendship scale. Overall, caregivers participated less frequently in group social activities although they rated it as their favorite. Serving as a caregiver for more than 5 years was significantly correlated with loneliness and social isolation. Furthermore, higher caregiver burden was associated with higher levels of social isolation. Healthcare professionals should not only learn about the impact of caregiver burden on social health of caregivers but should educate caregivers on the importance of finding ways to connect with others socially to minimize the negative impact on their health and well-being."],"dc:format":["application/pdf"],"dc:identifier":["https://hdl.handle.net/2142/125576"],"dc:language":["en","eng"],"dc:rights":["Copyright 2024 Sarah Jones"],"dc:subject":["Family Caregiver","Dementia","Social Engagement","Older Adult"],"dc:title":["The relationship between caregiver burden and participation in social engagement activities in older adult caregivers of persons with dementia"],"dc:type":["text","Thesis"],"thesis:degree_discipline":["Speech & Hearing Science"],"thesis:degree_level":["Thesis"],"thesis:degree_name":["M.A."],"thesis:institution_name":["University of Illinois at Urbana-Champaign"]},"updated_at":"2026-07-22T22:25:02Z"}