{"id":{"repo_id":"uiuc","oai_identifier":"oai:www.ideals.illinois.edu:2142/104985"},"canonical_url":"https://search.dev.ndltd.org/etd/uiuc/oai:www.ideals.illinois.edu:2142/104985","repository":{"repo_id":"uiuc","name":"University of Illinois - Urbana-Champaign","base_url":"https://www.ideals.illinois.edu/oai-pmh"},"display":{"title":"Sibling training for early future planning (step) project for adult siblings of individuals with intellectual and developmental disabilities: A pilot study","abstract":"Individuals with intellectual and developmental disabilities (IDD) are having increasingly longer lives. Their families often face challenges with sustained caregiving. Thus, future planning is a key issue for families of individuals with IDD. Given that many siblings expect to be caregivers for their brothers and sisters with IDD, it is important to support siblings during the transition to caregiving roles. However, there are few interventions supporting siblings of individuals with IDD with regard to future planning. In this study, I examined the effect and social validity of a four-week future planning training intervention (i.e., Sibling Training for Early future Planning, STEP) on increasing: future planning activities; communication and problem-solving among family members of individuals with IDD; empowerment; knowledge of adult service delivery systems; and connectedness among siblings of individuals with IDD. Eleven participants were included in this single arm, intervention study. After completing the STEP program, participants demonstrated significantly increased: knowledge of adult service delivery systems; family communication; sibling connectedness and empowerment. In addition, participants were satisfied with the logistics of the training and met their expectations for the training. To attribute changes in outcomes to the STEP program, a randomized controlled trial design should be conducted in future research.","abstract_html":"Individuals with intellectual and developmental disabilities (IDD) are having increasingly longer lives. Their families often face challenges with sustained caregiving. Thus, future planning is a key issue for families of individuals with IDD. Given that many siblings expect to be caregivers for their brothers and sisters with IDD, it is important to support siblings during the transition to caregiving roles. However, there are few interventions supporting siblings of individuals with IDD with regard to future planning. In this study, I examined the effect and social validity of a four-week future planning training intervention (i.e., Sibling Training for Early future Planning, STEP) on increasing: future planning activities; communication and problem-solving among family members of individuals with IDD; empowerment; knowledge of adult service delivery systems; and connectedness among siblings of individuals with IDD. Eleven participants were included in this single arm, intervention study. After completing the STEP program, participants demonstrated significantly increased: knowledge of adult service delivery systems; family communication; sibling connectedness and empowerment. In addition, participants were satisfied with the logistics of the training and met their expectations for the training. To attribute changes in outcomes to the STEP program, a randomized controlled trial design should be conducted in future research.","abstract_has_math":false,"creators":["Lee, Chung Eun"],"institution":"University of Illinois at Urbana-Champaign","degree_name":"Ph.D.","degree_level":"Dissertation","degree_discipline":"Special Education","degree_department":null,"school":null,"contributors":["Burke, Meghan M","Santos, Rosa M","Meadan-Kaplansky, Hedda","Channell, Marie M"],"advisors":[],"committee_chairs":[],"committee_members":[],"year":2019,"date_issued":"2019-08-23T20:35:44Z","date_published":"2019-08-23T20:35:44Z","updated_at":"2026-07-22T22:24:44Z","subjects":["Siblings of individuals with disabilities"],"languages":["en"],"rights":["Copyright 2019 Chung eun Lee"],"rights_urls":[],"identifier_entries":[]},"links":{"outbound_url":"http://hdl.handle.net/2142/104985","outbound_label":"Handle","outbound_source":"dc:identifier"},"metadata_groups":[{"id":"people","label":"People","entries":[{"key":"dc:contributor","label":"Contributor","values":["Burke, Meghan M","Santos, Rosa M","Meadan-Kaplansky, Hedda","Channell, Marie M"]},{"key":"dc:creator","label":"Author","values":["Lee, Chung Eun"]}]},{"id":"academic_context","label":"Academic Context","entries":[{"key":"dc:date","label":"Dc Date","values":["2019-08-23T20:35:44Z","2021-08-24T09:15:16Z","2019-04-01","2019-05"]},{"key":"dc:type","label":"Dc Type","values":["text"]},{"key":"thesis:degree_discipline","label":"Discipline","values":["Special Education"]},{"key":"thesis:degree_level","label":"Degree Level","values":["Dissertation"]},{"key":"thesis:degree_name","label":"Degree Name","values":["Ph.D."]},{"key":"thesis:institution_name","label":"Thesis Institution Name","values":["University of Illinois at Urbana-Champaign"]}]},{"id":"subjects_keywords","label":"Subjects and Keywords","entries":[{"key":"dc:subject","label":"Dc Subject","values":["Siblings of individuals with disabilities"]}]},{"id":"language_rights","label":"Language and Rights","entries":[{"key":"dc:language","label":"Dc Language","values":["en"]},{"key":"dc:rights","label":"Dc Rights","values":["Copyright 2019 Chung eun Lee"]}]},{"id":"identifiers","label":"Identifiers","entries":[{"key":"dc:identifier","label":"Identifier","values":["http://hdl.handle.net/2142/104985"]}]},{"id":"additional","label":"Additional Metadata","entries":[{"key":"dc:description","label":"Description","values":["Individuals with intellectual and developmental disabilities (IDD) are having increasingly longer lives. Their families often face challenges with sustained caregiving. Thus, future planning is a key issue for families of individuals with IDD. Given that many siblings expect to be caregivers for their brothers and sisters with IDD, it is important to support siblings during the transition to caregiving roles. However, there are few interventions supporting siblings of individuals with IDD with regard to future planning. In this study, I examined the effect and social validity of a four-week future planning training intervention (i.e., Sibling Training for Early future Planning, STEP) on increasing: future planning activities; communication and problem-solving among family members of individuals with IDD; empowerment; knowledge of adult service delivery systems; and connectedness among siblings of individuals with IDD. Eleven participants were included in this single arm, intervention study. After completing the STEP program, participants demonstrated significantly increased: knowledge of adult service delivery systems; family communication; sibling connectedness and empowerment. In addition, participants were satisfied with the logistics of the training and met their expectations for the training. To attribute changes in outcomes to the STEP program, a randomized controlled trial design should be conducted in future research.","Submission published under a 24 month embargo labeled 'U of I Access', the embargo will last until 2021-05-01","The student, Chung eun Lee, accepted the attached license on 2019-03-30 at 23:19.","The student, Chung eun Lee, submitted this Dissertation for approval on 2019-03-30 at 23:24.","This Dissertation was approved for publication on 2019-04-01 at 13:22.","DSpace SAF Submission Ingestion Package generated from Vireo submission #13474 on 2019-08-22 at 15:05:16","Made available in DSpace on 2019-08-23T20:35:44Z (GMT). No. of bitstreams: 2 LEE-DISSERTATION-2019.pdf: 3370643 bytes, checksum: 855300459f65d74b66b67e1da81408ca (MD5) LICENSE.txt: 4210 bytes, checksum: b0b3f0207c74bc6e9df0cdefdaccf6d5 (MD5) Previous issue date: 2019-04-01","Embargo set by: Seth Robbins for item 112104 Lift date: 2021-08-23T20:36:18Z Reason: Author requested U of Illinois access only (OA after 2yrs) in Vireo ETD system","U of I Only Restriction Lifted for Item 112104 on 2021-08-24T09:15:16Z."]},{"key":"dc:format","label":"Dc Format","values":["application/pdf"]},{"key":"dc:title","label":"Title","values":["Sibling training for early future planning (step) project for adult siblings of individuals with intellectual and developmental disabilities: A pilot study"]}]}],"canonical_facts":{"dc:contributor":["Burke, Meghan M","Santos, Rosa M","Meadan-Kaplansky, Hedda","Channell, Marie M"],"dc:creator":["Lee, Chung Eun"],"dc:date":["2019-08-23T20:35:44Z","2021-08-24T09:15:16Z","2019-04-01","2019-05"],"dc:description":["Individuals with intellectual and developmental disabilities (IDD) are having increasingly longer lives. Their families often face challenges with sustained caregiving. Thus, future planning is a key issue for families of individuals with IDD. Given that many siblings expect to be caregivers for their brothers and sisters with IDD, it is important to support siblings during the transition to caregiving roles. However, there are few interventions supporting siblings of individuals with IDD with regard to future planning. In this study, I examined the effect and social validity of a four-week future planning training intervention (i.e., Sibling Training for Early future Planning, STEP) on increasing: future planning activities; communication and problem-solving among family members of individuals with IDD; empowerment; knowledge of adult service delivery systems; and connectedness among siblings of individuals with IDD. Eleven participants were included in this single arm, intervention study. After completing the STEP program, participants demonstrated significantly increased: knowledge of adult service delivery systems; family communication; sibling connectedness and empowerment. In addition, participants were satisfied with the logistics of the training and met their expectations for the training. To attribute changes in outcomes to the STEP program, a randomized controlled trial design should be conducted in future research.","Submission published under a 24 month embargo labeled 'U of I Access', the embargo will last until 2021-05-01","The student, Chung eun Lee, accepted the attached license on 2019-03-30 at 23:19.","The student, Chung eun Lee, submitted this Dissertation for approval on 2019-03-30 at 23:24.","This Dissertation was approved for publication on 2019-04-01 at 13:22.","DSpace SAF Submission Ingestion Package generated from Vireo submission #13474 on 2019-08-22 at 15:05:16","Made available in DSpace on 2019-08-23T20:35:44Z (GMT). No. of bitstreams: 2 LEE-DISSERTATION-2019.pdf: 3370643 bytes, checksum: 855300459f65d74b66b67e1da81408ca (MD5) LICENSE.txt: 4210 bytes, checksum: b0b3f0207c74bc6e9df0cdefdaccf6d5 (MD5) Previous issue date: 2019-04-01","Embargo set by: Seth Robbins for item 112104 Lift date: 2021-08-23T20:36:18Z Reason: Author requested U of Illinois access only (OA after 2yrs) in Vireo ETD system","U of I Only Restriction Lifted for Item 112104 on 2021-08-24T09:15:16Z."],"dc:format":["application/pdf"],"dc:identifier":["http://hdl.handle.net/2142/104985"],"dc:language":["en"],"dc:rights":["Copyright 2019 Chung eun Lee"],"dc:subject":["Siblings of individuals with disabilities"],"dc:title":["Sibling training for early future planning (step) project for adult siblings of individuals with intellectual and developmental disabilities: A pilot study"],"dc:type":["text"],"thesis:degree_discipline":["Special Education"],"thesis:degree_level":["Dissertation"],"thesis:degree_name":["Ph.D."],"thesis:institution_name":["University of Illinois at Urbana-Champaign"]},"updated_at":"2026-07-22T22:24:44Z"}