Bereaved caregivers experiences of end-of-life care for people with heart failure : an interpretative phenomenological analysis
Heart failure is a progressive, life-limiting condition that can involve periods of distress for both the individual and their caregiver, particularly at the end of life. This study, therefore, examines the end-of-life experiences of bereaved caregivers of individuals with heart failure. The qualitative methodology of Interpretative Phenomenological Analysis (IPA) was employed. Semi-structured interviews were undertaken with seven bereaved caregivers from the United Kingdom. Data were analysed using the principles of IPA. The findings revealed that caregivers experienced a limited understanding of heart failure, a need to rely on ‘insider knowledge’ to access palliative care services, and received inadequate professional support throughout the care trajectory. These challenges contributed to significant emotional and psychosocial distress both during the caregiving period and into bereavement. The findings emphasise the need for improved equitable access to palliative care, and robust support systems to address the full spectrum of caregiver needs.
Networked Digital Library of Theses and Dissertations