Back to results

University of Northampton

Why is the hidden disability of autism so visible in mental health inpatient services? The autistic view from personal stories.

Abstract

dc:description.abstract

Autistic individuals are overrepresented on mental health wards in the UK compared to in the general population. This has implications for the provision of mental health care. It is important to understand why this minority group appear to be more inclined to reach mental health crisis and require inpatient admission. All individuals have rights to equity of access to mental health support, autistic people are no different in this regard. Uniquely this study takes a life story approach to gather personal stories of autistic people through loosely semi-structured interview to gain their perspective. Using Interpretative Phenomenological Analysis (IPA), analysis was checked with each participant to agree a shared interpretation, guarding against the double empathy problem, before looking across the five stories for any commonalities. Themes for risk of mental health hospital admission emerged as: “being different, not fitting in”; “not believed, misunderstood”; “negative sense of self” and “unhelpful support not addressing needs”. Protective themes against mental health hospital admission were “trusting relationships”, “understanding self” and “using skills for a purpose”. This study has evidenced hospital admissions for autistic people due to mental health crisis is not simply a clinical concern but a relational, rights-based issue that requires societal and systemic change to meet statutory commitments to inclusivity. In addition, the thesis demonstrates methodological implications for authentic coproduction with autistic people, providing recommendations towards best practice.

Degree

thesis:*
Name dc:type.qualificationname
Doctoral Thesis
Level dc:type.qualificationlevel
Student thesis
Grantor dc:publisher.institution
University of Northampton
Year dc:date.issued
2026

Author and committee

dc:creator, dc:contributor.*
Author dc:creator
  • Kirby, Louise
Advisors dc:contributor.advisor
  • Horton, John
  • Payne, Katy-Louise
  • Pilkington, Andrew

Subjects

dc:subject × 4

Rights

Language dc:language
eng

Identifiers

dc:identifier.*
Identifier
oai:pure.atira.dk:studenttheses/f36d0861-e194-488d-b184-e12a3975c9c2
OAI identifier oai:identifier
oai:pure.atira.dk:studenttheses/f36d0861-e194-488d-b184-e12a3975c9c2

Chain of custody

source
Harvested from
University of Northampton
Base URL
pure.northampton.ac.uk/ws/oai
Last updated
2026-07-24
Source record
OAI-PMH GetRecord
citation

Kirby, Louise. Why is the hidden disability of autism so visible in mental health inpatient services? The autistic view from personal stories.. Student thesis thesis, University of Northampton, 2026. https://pure.northampton.ac.uk/en/studentTheses/f36d0861-e194-488d-b184-e12a3975c9c2