Holding Space: How Caregivers Narrate Support, Stress, and School Partnership

<p>This qualitative dissertation examined how caregivers of students with low-incidence disabilities experienced and interpreted school support within the context of daily family life. Grounded in the social model of disability, the study was designed to explore the nature of meaningful school-based support, the limitations caregivers encountered, and the ways school-family relationships shaped these experiences over time. The overarching research question asked how caregivers of students with low-incidence disabilities perceived the school’s role in supporting their families. A qualitative research design was selected to center caregiver voice and allow for in-depth exploration of lived experience. Data were collected through semi-structured interviews with caregivers and were analyzed using within-case and cross-case thematic analysis to identify recurring patterns across participant narratives. The findings indicated that caregivers experienced school support most positively when it was characterized by trust, empathy, clear communication, advocacy, flexibility, and authentic partnership. Caregivers also described emotional validation and connection with other families as meaningful forms of support. At the same time, participants identified gaps when support was limited to procedural expectations, compliance, or surface-level involvement that did not fully acknowledge the complexity of caregiving. The study concludes that school support was most meaningful when it extended beyond formal responsibilities to include relational, family-centered practices. The findings suggest that schools should strengthen communication, caregiver partnership, and responsive support structures for families. </p>

Name thesis:degree_name

Ed.D. Doctor of Education

Level thesis:degree_level

Dissertation - Public Access

Discipline thesis:degree_discipline

Disability and Equity in Education

Year dc:date.available

2026

Author dc:creator

• Davenport, Celia D

Contributors dc:contributor

• Molly Buren, PhD
• Terry Jo Smith, PhD
• Blanca Gamez-Djokic, PhD

• low-incidence disabilities
• special education
• caregiver support
• family-school partnerships
• caregiver advocacy
• self-contained special education
• Disability and Equity in Education

Repository record dc:identifier

https://digitalcommons.nl.edu/diss/990

OAI identifier oai:identifier

oai:digitalcommons.nl.edu:diss-2062