{"id":{"repo_id":"essex","oai_identifier":"oai:repository.essex.ac.uk:22079"},"canonical_url":"https://search.dev.ndltd.org/etd/essex/oai:repository.essex.ac.uk:22079","repository":{"repo_id":"essex","name":"University of Essex","base_url":"https://repository.essex.ac.uk/cgi/oai2"},"display":{"title":"Trauma, growth and coping in parents of children with congenital heart disease : A mixed methods study.","abstract":"Background: Raising a child with a congenital heart disease (CHD) can be a difficult experience. Posttraumatic stress symptoms have been observed in parents of children with CHD. However, there is little research investigating post traumatic growth (PTG); or the positive changes following trauma, in this population. This study aimed to to explore the experience of parents of a child with CHD as related to the constructs of traumatic stress symptoms and posttraumatic growth. Method: A priority sequence approach was used with a preliminary quantitative survey. This was followed by asynchronous online discussion groups. Parents completed the: Psychological well-being posttraumatic changes questionnaire, Posttraumatic stress disorder checklist 5 and Perceived ability to cope with trauma questionnaire. Thematic analysis was used to analyse discussion group material. Results: Parents reported experiencing symptoms of PTSD; and more than one fifth of parents scored above clinical cut offs for PTSD. The majority of parents reported positive change. Thematic analysis constructed three themes: being a parent of a child with CHD, facing uncertainty and the changes in our lives , which corroborate and extend previous findings. Discussion: The implications of this study’s findings are discussed in the context of previous research and the methodological considerations of the study. Clinical and research implications are also presented.","abstract_html":"Background: Raising a child with a congenital heart disease (CHD) can be a difficult experience. Posttraumatic stress symptoms have been observed in parents of children with CHD. However, there is little research investigating post traumatic growth (PTG); or the positive changes following trauma, in this population. This study aimed to to explore the experience of parents of a child with CHD as related to the constructs of traumatic stress symptoms and posttraumatic growth. Method: A priority sequence approach was used with a preliminary quantitative survey. This was followed by asynchronous online discussion groups. Parents completed the: Psychological well-being posttraumatic changes questionnaire, Posttraumatic stress disorder checklist 5 and Perceived ability to cope with trauma questionnaire. Thematic analysis was used to analyse discussion group material. Results: Parents reported experiencing symptoms of PTSD; and more than one fifth of parents scored above clinical cut offs for PTSD. The majority of parents reported positive change. Thematic analysis constructed three themes: being a parent of a child with CHD, facing uncertainty and the changes in our lives , which corroborate and extend previous findings. Discussion: The implications of this study’s findings are discussed in the context of previous research and the methodological considerations of the study. Clinical and research implications are also presented.","abstract_has_math":false,"creators":["Tan, E C"],"institution":"University of Essex","degree_name":null,"degree_level":"other","degree_discipline":null,"degree_department":null,"school":null,"contributors":[],"advisors":[],"committee_chairs":[],"committee_members":[],"year":2018,"date_issued":"2018-05","date_published":"2018-05","updated_at":"2026-07-24T02:18:21Z","subjects":["BF Psychology"],"languages":["en"],"rights":[],"rights_urls":[],"identifier_entries":[]},"links":{"outbound_url":null,"outbound_label":null,"outbound_source":null},"metadata_groups":[{"id":"people","label":"People","entries":[{"key":"dc:creator","label":"Author","values":["Tan, E C"]}]},{"id":"academic_context","label":"Academic Context","entries":[{"key":"dc:date","label":"Dc Date","values":["2018-05"]},{"key":"dc:date.issued","label":"Date","values":["2018-05"]},{"key":"dc:publisher.department","label":"Dc Publisher Department","values":["School of Health and Social Care"]},{"key":"dc:publisher.institution","label":"Dc Publisher Institution","values":["University of Essex"]},{"key":"dc:relation.isreferencedby","label":"Dc Relation Isreferencedby","values":["https://repository.essex.ac.uk/22079/"]},{"key":"dc:type","label":"Dc Type","values":["Thesis"]},{"key":"dc:type.qualificationlevel","label":"Dc Type Qualificationlevel","values":["other"]}]},{"id":"subjects_keywords","label":"Subjects and Keywords","entries":[{"key":"dc:subject","label":"Dc Subject","values":["BF Psychology"]}]},{"id":"language_rights","label":"Language and Rights","entries":[{"key":"dc:language","label":"Dc Language","values":["en"]}]},{"id":"identifiers","label":"Identifiers","entries":[{"key":"dc:identifier.uri","label":"Identifier URI","values":["https://repository.essex.ac.uk/22079/1/Accepted%20Thesis.pdf"]}]},{"id":"additional","label":"Additional Metadata","entries":[{"key":"dc:description.abstract","label":"Abstract","values":["Background: Raising a child with a congenital heart disease (CHD) can be a difficult experience. Posttraumatic stress symptoms have been observed in parents of children with CHD. However, there is little research investigating post traumatic growth (PTG); or the positive changes following trauma, in this population. This study aimed to to explore the experience of parents of a child with CHD as related to the constructs of traumatic stress symptoms and posttraumatic growth. Method: A priority sequence approach was used with a preliminary quantitative survey. This was followed by asynchronous online discussion groups. Parents completed the: Psychological well-being posttraumatic changes questionnaire, Posttraumatic stress disorder checklist 5 and Perceived ability to cope with trauma questionnaire. Thematic analysis was used to analyse discussion group material. Results: Parents reported experiencing symptoms of PTSD; and more than one fifth of parents scored above clinical cut offs for PTSD. The majority of parents reported positive change. Thematic analysis constructed three themes: being a parent of a child with CHD, facing uncertainty and the changes in our lives , which corroborate and extend previous findings. Discussion: The implications of this study’s findings are discussed in the context of previous research and the methodological considerations of the study. Clinical and research implications are also presented."]},{"key":"dc:format","label":"Dc Format","values":["text"]},{"key":"dc:title","label":"Title","values":["Trauma, growth and coping in parents of children with congenital heart disease : A mixed methods study."]}]}],"canonical_facts":{"dc:creator":["Tan, E C"],"dc:date":["2018-05"],"dc:date.issued":["2018-05"],"dc:description.abstract":["Background: Raising a child with a congenital heart disease (CHD) can be a difficult experience. Posttraumatic stress symptoms have been observed in parents of children with CHD. However, there is little research investigating post traumatic growth (PTG); or the positive changes following trauma, in this population. This study aimed to to explore the experience of parents of a child with CHD as related to the constructs of traumatic stress symptoms and posttraumatic growth. Method: A priority sequence approach was used with a preliminary quantitative survey. This was followed by asynchronous online discussion groups. Parents completed the: Psychological well-being posttraumatic changes questionnaire, Posttraumatic stress disorder checklist 5 and Perceived ability to cope with trauma questionnaire. Thematic analysis was used to analyse discussion group material. Results: Parents reported experiencing symptoms of PTSD; and more than one fifth of parents scored above clinical cut offs for PTSD. The majority of parents reported positive change. Thematic analysis constructed three themes: being a parent of a child with CHD, facing uncertainty and the changes in our lives , which corroborate and extend previous findings. Discussion: The implications of this study’s findings are discussed in the context of previous research and the methodological considerations of the study. Clinical and research implications are also presented."],"dc:format":["text"],"dc:identifier.uri":["https://repository.essex.ac.uk/22079/1/Accepted%20Thesis.pdf"],"dc:language":["en"],"dc:publisher.department":["School of Health and Social Care"],"dc:publisher.institution":["University of Essex"],"dc:relation.isreferencedby":["https://repository.essex.ac.uk/22079/"],"dc:subject":["BF Psychology"],"dc:title":["Trauma, growth and coping in parents of children with congenital heart disease : A mixed methods study."],"dc:type":["Thesis"],"dc:type.qualificationlevel":["other"]},"updated_at":"2026-07-24T02:18:21Z"}