Defining Resilience in Young People with Inflammatory Bowel Disease: A Theory Informed Approach
type: CreativeWork
description: Inflammatory Bowel Disease (IBD) is a chronic gastrointestinal illness for which there is no existing cure. There is significant literature documenting the increased likelihood of adverse biopsychosocial outcomes in young people with IBD (e.g., Greenley et al., 2010); however, many individuals with IBD respond by either maintaining or increasing outcomes categorized as positive. These trajectories can be thought of as characterized by a resilient response. The study of resilience in young people with IBD is nascent. Given the unique disease-specific and developmental contexts young people with IBD experience, the first step in understanding the process of resilience in young people with IBD is to conduct an investigation as informed by a broader, theory-informed definition of resilience allowing for the consideration of disease and developmentally specific contexts and resources. The current study aims to utilize Ungar’s 2019 three-dimensional framework to better understand and describe the complex construct of resilience in young people with IBD. This framework recommends the intentional inclusion and integration of three dimensions when conceptualizing and defining resilience as best practice: the specific contexts of risk exposure, protective and promotive factors and processes (PPFPs), and desired outcomes including and beyond the absence of risk. The current study utilized a qualitative approach to describe resilience in young people with IBD utilizing this multi-dimensional framework. Participants included 21 children and adolescents (ages 11-17) diagnosed with IBD within the past year and 20 caregivers. Children and their caregivers completed a semi-structured interview as a part of a broader research study describing early psychosocial risks in the development of IBD-specific anxiety. As informed by thematic analysis and codebook analysis, the study team developed a set of inductive codes utilizing both child and caregiver transcripts, leading to the develop…
abstract: Inflammatory Bowel Disease (IBD) is a chronic gastrointestinal illness for which there is no existing cure. There is significant literature documenting the increased likelihood of adverse biopsychosocial outcomes in young people with IBD (e.g., Greenley et al., 2010); however, many individuals with IBD respond by either maintaining or increasing outcomes categorized as positive. These trajectories can be thought of as characterized by a resilient response. The study of resilience in young people with IBD is nascent. Given the unique disease-specific and developmental contexts young people with IBD experience, the first step in understanding the process of resilience in young people with IBD is to conduct an investigation as informed by a broader, theory-informed definition of resilience allowing for the consideration of disease and developmentally specific contexts and resources. The current study aims to utilize Ungar’s 2019 three-dimensional framework to better understand and describe the complex construct of resilience in young people with IBD. This framework recommends the intentional inclusion and integration of three dimensions when conceptualizing and defining resilience as best practice: the specific contexts of risk exposure, protective and promotive factors and processes (PPFPs), and desired outcomes including and beyond the absence of risk. The current study utilized a qualitative approach to describe resilience in young people with IBD utilizing this multi-dimensional framework. Participants included 21 children and adolescents (ages 11-17) diagnosed with IBD within the past year and 20 caregivers. Children and their caregivers completed a semi-structured interview as a part of a broader research study describing early psychosocial risks in the development of IBD-specific anxiety. As informed by thematic analysis and codebook analysis, the study team developed a set of inductive codes utilizing both child and caregiver transcripts, leading to the develop…
author: Storch, Barbara
keywords: Clinical Psychology, Health Psychology, Pediatric Inflammatory Bowel Disease, Resilience
date published: 2024-09-01T07:00:00Z
date modified: 2026-07-24T01:59:14Z
provider: City University of New York - Graduate Center
publisher: Networked Digital Library of Theses and Dissertations
type: WebPage
source organization: The Graduate School and University Center of The City University of New York