Parent perspectives of at-home cognitive intervention for preschoolers with Down syndrome

Down syndrome (DS) is associated with challenges related to cognitive skills, including executive function (EF). Intervention provided during early childhood can support the development of EF, however there are few cognitive interventions designed for young developmental ages. Parent-mediated interventions (PMIs) are emerging as an effective and scalable intervention approach for clinical populations. PMIs require ongoing parent engagement, and therefore, it is critical for a PMI to meet the needs of its intended users. This study used a community-based participatory research (CBPR) framework to (1) understand the daily routines of families of young children with DS and (2) describe parent perceptions of participating in at-home intervention. Participants were 34 caregivers of children 3 – 6 years old with DS living in Italy or the US. Participants responded to questions related to daily tasks they help their children complete and their perceptions of at-home cognitive intervention. Interviews were transcribed and independently coded (inter-rater agreement = .80). Four themes related to daily routines were identified: what parents help with, how parents help, why parents help, and how children respond. Three themes related to parent perceptions of interventions were identified: advantages of parent-led interventions, disadvantages of parent-led interventions, and desires for interventions. Findings suggest that PMIs targeting preschool-aged children with DS should require a short time commitment, blend intervention activities into daily routines, and include other family members. Findings from this study have important implications for the development of novel interventions aimed at supporting families in this population.

Name thesis:degree_name

Master of Science (M.S.)

Level thesis:degree_level

Masters

Discipline thesis:degree_discipline

Human Development and Family Studies

Grantor dc:publisher

Colorado State University. Libraries

Year dc:date.issued

2023

Authors dc:creator

• Walsh, Madison M., author
• Fidler, Deborah, advisor
• Hepburn, Susan, committee member
• Yoder, Jamie, committee member

• Down syndrome
• focus groups
• children
• intervention
• executive function

Statement dc:rights

• Copyright and other restrictions may apply. User is responsible for compliance with all applicable laws. For information about copyright law, please see https://libguides.colostate.edu/copyright.

Language dc:language.iso

eng, English

Identifier URI

https://doi.org/10.25675/3.02457

OAI identifier oai:identifier

oai:mountainscholar.org:10217/237332