Understanding the Lived Experiences of Autistic Adults

<p>Although there is a plethora of autism-related research, research related to transition and support needs for autistic adults remains limited. The purpose of this study was to understand the hopes, dreams, aspirations, challenges, and lived experiences of autistic adults. Academic literature has largely emphasized autism as a medical deficit, and use of first-person narratives to understand needs of people on the autism spectrum is rare. To fill this gap, I conducted a narrative study through a social model of disability lens and centered voices of autistic individuals. The narrative component of this research allowed readers to understand the subjective experiences of individuals directly from the source. This study included both academic literature and autobiographies written by autistic authors. The coauthor in this study is also an autistic adult who presented his life experiences for a central narrative. In contrast to the Diagnostic and Statistical Manual of Mental Disorders (DSM), which conceptualizes autism as a list of deficits, a number of powerful themes emerged from analysis of autistic authors’ lives: Isolation, Influence of Parents, Differences in Needs: Education and Employment, Empowerment, and Relationships. By using grounded theory analysis, these themes were contextualized via theories of neurodiversity paradigm and monotropism theory to better understand autistic experiences and needs. Furthermore, Milton’s (2012) double empathy problem reconceptualizes autistic experiences as a mutual lack of understanding of other’s behaviors by neurodiverse and neurotypical people, and the appropriate form of treatment would be to work toward understanding these dichotomous behaviors. This research recognized that only someone who is autistic can be considered a true expert on autism; thus, it is imperative researchers consult with and collaborate with autistic individuals to develop the most useful support services possible. By including autistic people in research design, implementation, and support services, academics and therapists can learn from the neurodiverse about problems that the social and cultural worlds present them with, thereby moving toward a more socially just society.</p>

Name thesis:degree_name

Doctor of Philosophy (PhD)

Level thesis:degree_level

Dissertation

Discipline thesis:degree_discipline

Education

Year dc:date.available

2021

Author dc:creator

• Mathur, Sneha Kohli

Contributors dc:contributor

• Scot Danforth
• Lilia Monzo
• Phil Ferguson

• Autism Spectrum Disorder
• Transition to Adulthood
• First-Person Narrative
• Asperger Syndrome
• Lived Experiences
• Accessibility
• Social and Behavioral Sciences
• Special Education and Teaching

Repository record dc:identifier

https://digitalcommons.chapman.edu/education_dissertations/39

OAI identifier oai:identifier

oai:digitalcommons.chapman.edu:education_dissertations-1038