The Perceived Effectiveness of School-Based Accommodations for Students with Systemic Lupus Erythematosus

<p>Pediatric patients with systemic lupus erythematosus battle a chronic, autoimmune illness which can be life-threatening in cases of vital organ involvement. Disease activity and severity is harsher during the developmental period of childhood and adolescence than during adulthood. Lupus symptoms and medication side effects may cause patients to experience neurocognitive and/or physical impairment. The cyclical nature of the illness consists of flare and remission phases. The present study explored the topic of pediatric lupus in the school setting due to the severe impact of the illness on youth. It examined the accommodations provided to students, as well as the patients' preferred accommodations. Anonymous English and Spanish surveys were placed in the waiting rooms of three lupus clinics in three different California counties. The target population consisted of middle and high school students who have the diagnosis of lupus. Surveys were completed by the students or by their parents/guardians. They were asked to list the ideal educational accommodations that is needed to earn a high school diploma. They were also asked about their present accommodations and services. A total of 39 surveys were collected in approximately five months. Based on the grade point averages, all of the students in the sample were passing their classes. The educational accommodation that was preferred most often by the pediatric patients with lupus was the need for extended time to complete assignments. It was the top choice among the presently given-accommodations list and the ideal accommodations list.</p>

Name thesis:degree_name

Doctor of Philosophy (PhD)

Level thesis:degree_level

Dissertation

Discipline thesis:degree_discipline

Education

Year dc:date.available

2020

Author dc:creator

• Seng, MaryAnn

Contributors dc:contributor

• Dr. Randy Busse
• Dr. Michael Hass
• Dr. George DuPaul

• Lupus
• Accommodations
• Illness
• Students
• School
• Patients
• Disability and Equity in Education
• Educational Psychology

Repository record dc:identifier

https://digitalcommons.chapman.edu/education_dissertations/17

OAI identifier oai:identifier

oai:digitalcommons.chapman.edu:education_dissertations-1016