Development of a conceptual framework to inform self-advocacy for social and health-related policy priorities of adults with intellectual disability
type: CreativeWork
description: Background: People with intellectual disability are generally not consulted in the development of public policies which impact on their lives. This study focuses on the development of a conceptual framework to support self-advocacy by people with intellectual disability for the inclusion of their priorities in social and health-related policy in South Africa. The study was informed by empowerment theory, with the integration of the concept of Ubuntu. Method: The study design was qualitative and was underpinned by the hermeneutic phenomenological approach. This approach allowed the researcher to understand lived experiences of the research participants in order to gain deeper insights regarding core elements of a conceptual framework for self-advocacy through interpreting their views on how they understand those experiences. Data were collected through a scoping review, semi structured interviews and focus groups. Twenty-five participants were sampled for this study; 10 participants were policy makers and service managers, five were self-advocates with intellectual disability, five supporters of people with intellectual disability and five parents/carers of people with intellectual disability. Sampling in this study was purposeful, policy makers, service providers, supporters and parents were purposefully sampled to participate in the study. Snowballing was used to identify participants with intellectual disability involved in advocacy groups in local Non-Profit Organisations. Data were analysed thematically, using ATLAS.ti. software. The framework approached guided the data analysis process. All data sources were triangulated to develop the conceptual framework for self-advocacy by people with intellectual disability. The development approaches used for three similar frameworks were considered in deriving a process to develop this study's conceptual framework. The first framework that focused on strengthening the participation of people with psychosocial disability …
abstract: Background: People with intellectual disability are generally not consulted in the development of public policies which impact on their lives. This study focuses on the development of a conceptual framework to support self-advocacy by people with intellectual disability for the inclusion of their priorities in social and health-related policy in South Africa. The study was informed by empowerment theory, with the integration of the concept of Ubuntu. Method: The study design was qualitative and was underpinned by the hermeneutic phenomenological approach. This approach allowed the researcher to understand lived experiences of the research participants in order to gain deeper insights regarding core elements of a conceptual framework for self-advocacy through interpreting their views on how they understand those experiences. Data were collected through a scoping review, semi structured interviews and focus groups. Twenty-five participants were sampled for this study; 10 participants were policy makers and service managers, five were self-advocates with intellectual disability, five supporters of people with intellectual disability and five parents/carers of people with intellectual disability. Sampling in this study was purposeful, policy makers, service providers, supporters and parents were purposefully sampled to participate in the study. Snowballing was used to identify participants with intellectual disability involved in advocacy groups in local Non-Profit Organisations. Data were analysed thematically, using ATLAS.ti. software. The framework approached guided the data analysis process. All data sources were triangulated to develop the conceptual framework for self-advocacy by people with intellectual disability. The development approaches used for three similar frameworks were considered in deriving a process to develop this study's conceptual framework. The first framework that focused on strengthening the participation of people with psychosocial disability …
author: Tyabashe-Phume, Babalwa
keywords: self-advocacy
date published: 2023
date modified: 2026-07-22T22:23:21Z
provider: University of Cape Town
publisher: Networked Digital Library of Theses and Dissertations
type: WebPage
source organization: Department of Psychiatry and Mental Health

PropertyValue
property ID: Handle
value: http://hdl.handle.net/11427/38548