Traversing the transition abyss : examining lived experiences of the transition to adulthood process for people with intellectual and developmental disabilities

Bear, Samantha J. The transition to adulthood for individuals with intellectual and developmental disabilities (IDD) remains a critical yet under-researched area, often characterized by fragmented planning and systemic barriers. Despite evidence-based practices and legal mandates, many individuals with IDD and their families continue to experience significant challenges when transitioning from mandated education to postsecondary life. This qualitative, phenomenological study explores the lived experiences of individuals with IDD, their families, and key stakeholders to better understand the factors that contribute to effective transition planning, as well as persistent gaps that contribute to the transition abyss. Using focus groups, this study identifies key barriers—including inadequate early planning, inconsistent interagency collaboration, and a lack of person-centered approaches—and examines the alignment of transition experiences with best practices. Findings highlight the need for a more holistic, inclusive, and proactive approach to transition planning that extends beyond compliance-based models to meaningful, individualized support. By amplifying the voices of those directly affected, this research contributes to a deeper understanding of the transition process and offers recommendations to bridge the gap between policy, practice, and lived experience. Implications for educators, policymakers, and service providers emphasize the necessity of coordinated, student-driven transition planning that prioritizes autonomy, self-determination, and long-term quality of life for individuals with IDD.

Grantor dc:publisher

Alverno College

Year dc:date

2025

Author dc:creator

• Bear, Samantha J.

• People with mental disabilities
• Developmental disabilities
• People with disabilities--Vocational guidance
• Special education
• Qualitative research
• Intellectual and developmental disabilities
• Transition planning
• Lived experiences
• Postsecondary outcomes
• Person-centered planning.

Statement dc:rights

• These materials may be used by individuals and libraries for personal use, research, teaching (including distribution to classes), or for any fair use as defined by U.S. Copyright Law.

Language dc:language

Englis

Repository record dc:identifier

https://alverno.omeka.net/items/show/987

OAI identifier oai:identifier

oai:alverno.omeka.net:987