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Showing 1 to 1 of 1 for “"parents of infants and children with complex health conditions"”.

  1. Psychosocial Impact of Paediatric Early Rapid Genomic Testing and Diagnosis: A Mixed Methods Study of Parental Adjustment, Adaptation, Risk and Resilience

    Technological advances have expanded the availability of genome sequencing in Paediatrics, with infants and children in intensive care units being eligible for rapid trio testing (rWGS). In the UK, the Next Generation Children Project (NGC; French et al., 2019, 2022) was the first large cohort of …

    cambridge Repository record for Psychosocial Impact of Paediatric Early Rapid Genomic Testing and Diagnosis: A Mixed Methods Study of Parental Adjustment, Adaptation, Risk and Resilience (opens in a new tab)