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Showing 1 to 2 of 2 for “"individual genetic results"”.

  1. Returning individual genetic results to research participants: experiences of stigma in South African families with neurodevelopmental disorders

    … Disorder (NDD). Likewise, the impact of genetic attribution on these experiences have not been extensively studied. The aim of this study was to explore the experiences of stigma of NeuroDev research participants and their families and how a positive genetic result influences/affects …

    cape-town Repository record for Returning individual genetic results to research participants: experiences of stigma in South African families with neurodevelopmental disorders (opens in a new tab)

  2. Expectations and Preferences of Parents and Adolescents Regarding Feedback of Individual Genetic Findings in an HIV-TB Genomic Research Project in Botswana

    … some would argue in support of the return of individual findings generated from genomics research, participants' preferences regarding which findings should be fed back differs. Most literature discusses feedback of findings in high income countries and very few address this issue in lower and …

    cape-town Repository record for Expectations and Preferences of Parents and Adolescents Regarding Feedback of Individual Genetic Findings in an HIV-TB Genomic Research Project in Botswana (opens in a new tab)