Global ETD Search
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Showing 1 to 7 of 7 for “"genetic discrimination"”.
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Motivations and Attitudes for Pursuing Anonymous Genetic Testing for Huntington’s Disease
… predictive testing. Concerns of privacy and genetic discrimination have been cited as reasons testing is declined. This leads some to seek anonymous testing, a process in which measures are taken to exclude identifying information, thereby preventing results from being linked to legal names, …
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Impact of Personal and Family History of Huntington's Disease on the Decision and Ability to Obtain Life, Long-term Care, and Disability Insurance
… changes, and they may or may not have undergone genetic testing to confirm the diagnosis. Individuals at-risk for HD are those who have not yet undergone genetic testing for HD, but have a first- or second- degree relative diagnosed with the disease. Genetic testing for HD is categorized into two …
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Decoding the Bundle of Sticks: Genetic Property Rights, Research & Regulation
… used to obtain improved health outcomes. As new genetic knowledge is learned, it can benefit an individual by providing the opportunity to treat or prevent a disease. Alternatively, the very same information can become harmful if used for discriminatory or commercially exploitative …
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Exploring Barriers to the Adoption of Pharmacogenomic Technology in the Clinical Setting by Clinical Healthcare Providers
… attitudes and experience concerning pharmacogenetic technology in a spectrum of different healthcare providers and types, and was administered online. This study found both knowledge and attitude, overall, to be highly correlated to adoption likelihood. Lack of knowledge was the most …
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Attitudes of Parents At Risk of Inheriting Li-Fraumeni Syndrome to wards Predictive Genetic Testing In Their Minor-Aged Children.
… at parental attitudes towards predictive p53 genetic testing in their children. This was a cross-sectional pilot study aimed at describing these attitudes. We identified individuals whose children were at risk for inheriting p53 genetic mutations. These individuals were provided with surveys …
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The ELSI Research Program and Genetic Nondiscrimination Legislation: A Study in Science and Public Poilicy
… is an increase in both the number and range of genetic tests available. Although there is enormous value in the knowledge gained from information that predicts present or future disease, there are also some risks. This thesis, based on the content analysis of genetic nondiscrimination …