Global ETD Search
Search theses and dissertations gathered from participating repositories worldwide. Every result links back to the library that holds it. No account is needed.
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Showing 1 to 1 of 1 for “"Biobank; Biorepository; Ethics; Genetics; Policy; Research"”.
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Return of Aggregate Results in Biorepository Research: An Exploratory Study of Participant Perspectives and Preferences
… aggregate (or summary) results of genomic biorepository research. Fifteen semi-structured interviews were conducted with members of the Northwest Institute of Genetic Medicine (NWIGM) cohort. Participants reported a desire for individual results, and expressed a clear preference for …