TREATING ALS WITH QUALITY OF LIFE IN LOW-INCOME URBAN PATIENT POPULATIONS

Amyotrophic Lateral Sclerosis is a neurodegenerative disease affecting adults with disease onset averaging between 50-60 years of age. As neurons die, patients experience rapid physical and cognitive decline with death typically following 3-5 years after diagnosis. As there is currently no cure for disease and no treatment to prolong life expectancy, medical management is focused on quality of life. In addition to traditional medical treatments, medical professionals must also consider maximizing autonomy as a way to increase quality of life with a focus on relational and psychological factors. For patients in low-income urban neighborhoods, inequalities affecting agency should be evaluated as part of medical care to increase both autonomy and overall quality of life.

Grantor dc:publisher

Temple University. Libraries

Year dc:date.issued

2021

Author dc:creator

• Kauffman, Lydia Q.

Advisor dc:contributor.advisor

• Rocco, Providenza Loera

• Medical ethics
• ALS
• Amyotrophic Lateral Sclerosis
• Quality of life
• Urban bioethics

Statement dc:rights

• IN COPYRIGHT- This Rights Statement can be used for an Item that is in copyright. Using this statement implies that the organization making this Item available has determined that the Item is in copyright and either is the rights-holder, has obtained permission from the rights-holder(s) to make their Work(s) available, or makes the Item available under an exception or limitation to copyright (including Fair Use) that entitles it to make the Item available.

Licence dc:rights.uri

• http://rightsstatements.org/vocab/InC/1.0/

Language dc:language.iso

eng

Handle dc:identifier.uri

http://hdl.handle.net/20.500.12613/6522

OAI identifier oai:identifier

oai:scholarshare.temple.edu:20.500.12613/6522